Friends, Countrymen, Lend me your Ears... and your
Organs!
Given the opportunity, most people would like to leave some form of legacy before they die. But what happens if death occurs before they have a chance to act on this? Carrying an organ donor card could be a last chance to have a positive impact on someone's life.
Organ donation in Ireland has a long, complicated and controversial history. A quick glance at Citizensinformation.ie will soon show you how unclear the law is on the issue. From the retention of organs to the legality of children and the mentally ill donating, the law is "unclear", and this has been reflected in the numerous court cases and inquiries that have plagued our judicial system and the country's coffers (Dunne Inquiry - take a bow). Muddier still is the legislation surrounding stem cell research and related avenues, such as the recent case of a UK family becoming the first to store their son’s umbilical cord tissue for potential use in the future against any disease he may develop. While storage of blood from the umbilical cord is common in the UK, this is a first for the tissue which allows the harvesting of the more useful stem cells. Ireland on the other hand lags far behind such initiatives, where the practice of even collecting stem cord blood continues to be outlawed, apart from private hospitals which then send the cells abroad.
Two types of organ donation are currently in operation in Ireland - living and deceased donations. Living donations are allowed for kidneys, tissues (like skin) and bone. Deceased donations include heart, lungs, liver, kidneys, pancreas and the eyes. A new phenomenon nicknamed ‘domino swap’ made headlines in the US recently. 6 individuals in need of a kidney each came to the John Hopkins Hospital in St. Louis with another healthy individual willing to donate who are not a match with their friend or loved one, but were with one of the other 5 individuals. The method ensured each person received a kidney, thus boosting the likelihood of someone donating in the first place. Ireland needs to follow such initiatives but is thus far failing to.
How much of a demand is there for organ donation in Ireland? There are currently over 600 people on the waiting list for organs, tough odds when on average 80 donations occur per year (resulting in about 250 overall donations). Demand clearly outstrips supply in a scenario where a single person donating can help up to 9 people. Irish Kidney Association (IKA) chief executive Mark Murphy highlights those on dialysis are increasing by over 16% every year. While the overwhelming majority of Irish transplants are kidney based, over 200 lives were saved in 2005 by organ donation.
There is no doubt deciding to donate your organs is a big decision. Ask yourself — would you donate a "spare" organ to a family member (such as a kidney)? Many would answer, hesitantly or otherwise, in the positive. How about a stranger you have never met? The opposite would be true here for the majority. Why should your quality of life suffer for somebody you never knew before, you might ask? I can understand and appreciate this. However, once you die this attitude should change. Bar religious or medical reasons (such as infection), I fail to see how anyone can selfishly refuse to donate organs for which they have no more use for, that could in fact save or improve another's life.
Often it is not selfishness that prevents organ donation, but the fact that those under a certain age simply don't dwell on their own mortality on a daily basis. They do not perceive the possibility that death may lie around the corner and many will not have thought seriously about the day they will die. There is nothing wrong with this: constantly dwelling on our demise is abnormal and interferes with enjoying life. On the other hand, making an informed decision on organ donation, informing your next-of-kin of your wishes and carrying a donor card should be the responsibility of each of us. Imagine how difficult it is approaching a grieving family and asking them for permission to remove the newly deceased's organs. If everyone is aware of your wishes, neither the family nor the medical team will have to go through this emotional minefield.
Unfortunately, the overwhelming demand for organs is not just down to the failure of ordinary people to think ahead. Firstly, inadequate State funding is a huge issue. Take for instance the temporary closure of the ward in Beaumont Hospital in May 2006 for dual kidney and pancreas transplants. This was due to the one surgeon capable of doing both being on sick leave. Mr. Murphy adds that the State has never properly funded the pancreatic transplant program. Another example is the agonizingly slow move away from sending people to the UK for transplants, as different options open up in Ireland. It is hard to believe that it was only May 2005 that the first lung transplant took place on Irish shores, after the opening of the lung transplant unit in March 2004. The State is obligated in its position of power to attract qualified individuals to this country, and to provide proper transplant facilities and staff, rather than piggybacking on foreign states like the UK. Such funding problems are not unique to this issue, and crop up in virtually every other area of our health service.
Secondly, the abuse of trust by hospitals in the organ retention scandals has caused some to shy away from considering organ donation. Thirdly, people are living longer and healthier for the most part, in particular thanks to advances such as seat-belts and intensive care units to name but two. Obviously this is a good sign of quality of life in Ireland, but the downside is the negative impact on the number of organs available at a given time.
Inevitably many of the organs that are given to the living regrettably come from the newly deceased. Their families must be commended for even thinking about allowing organ donation, regardless of whether they decide for or against it, as well as those doing the convincing and the actual operations. A brilliant idea by the IKA has been their lobbying for Ireland to follow Spain's lead, which has taken to hiring trained professionals specifically and solely to seek out donor consent in every intensive care ward. Spain leads the EU in organ donation. Such a person could calmly explain at an appropriate time the benefits of donating, without pressuring the family.
It must be remembered that finally getting the go-ahead for the transplant by no means guarantees survival of the recipient. For the body not to reject the organ means anything from months, years and often lifetimes on anti-rejection medication as well as keeping a healthy lifestyle and diet. The last thing someone awaiting a transplant needs is another barrier to the slim chance of finding a matching donor.
An ever-increasing minority in the health profession and otherwise have commented that a legally binding registry of those who want to opt out of donation ought to be established. In essence, if your name isn't on this list, then you automatically agree to donate your organs. At least if someone must physically de-register themselves, it gives them a chance to think about the pros and cons of organ donation. It would also eliminate the need to bother a grieving family or the loss of organs through a prospective donor's failure to inform their next-of-kin. Critics may argue that this "recycling" of organs is like an assembly line, without respect for the deceased or their families. Perhaps they should remember that giving an organ to another human being is possibly the single most altruistic action you can perform.
For further information and to obtain donor cards contact:
Email: donor@ika.ie
Web: www.ika.ie
Tel: 1890-543639
Text (free): ‘DONOR’ to 50050
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